One Last Gift

4 ‘He will wipe every tear from their eyes. There will be no more death’ or mourning or crying or pain, for the old order of things has passed away.”
Revelation 21:4

It's been four months. Exactly four months. The memory of that night will, I think, never fade. Bonnie and I walking into the house to see Ron sitting in his chair, sleeping. The call to 911. The house full of EMT's and police. Bonnie's phone call to her husband and her brother. My calls to my Dad, my brother, Ron's brother and mom. My call to my best friend Chris.The breath caught in my throat as the EMT's tried to revive Ron. The tears that choked me when my husband was pronounced dead. Allen, who lives on the upper edges of the autism spectrum, holding an ice cube in each hand to keep himself centered. The older kids gathered on the back deck, arms around each other.

We'd known the moment would come. But not this soon.

Four months. I've moved through 123 days now, taking care of final arrangements, dealing with insurance and medical equipment. I've been beside Allen as he used magical thinking to come to terms with the sudden death of his father. I've been there for the older kids and let them talk when they needed to, cry when they had to. I've tried to be a support to Ron's mother. I've gone back to work as an ESL teacher in an urban high school. I've paid bills and kept house and found a way to manage without Ron's social security income. I've picked out a grave marker. I've stopped waking up at night to check on Ron, who slept downstairs in a hospital bed for the last nine months. I've rearranged the living room, pushed my queen size bed to a corner of my bedroom. I've moved on. A little, anyway.

But the 13th of every month throws me back to that night 123 days ago, that night when I came
home to find Ron had, quietly and without fanfare, slipped away. I keep the tears at bay by keeping busy, teaching my students how to construct a sentence in English, working with the kids at church, playing Rack-o with Allen.

Plain and simple, I miss Ron's presence. Not his illness or the nursing tasks that fell to me. Just,
well, him.

I feel no guilt at his death. I know the truth of what my oldest son, Dennis, said to me the night his father died. "Mom, you sacrificed your life for Dad. No one could have done more than you did." In that truth there is some consolation. Despite the challenges of the last 19 years, Ron knew he was loved.

But still, the 13th of each month--and every month has one--looms. A hard day to get through. So far, there have been four of them, different from the other 119 days in their sharpness, the details of his final day imprinted in my brain.

In the early hours of today, November 13, the fourth of the 13's I've lived without Ron, I was given a gift. In the early morning hours, when I was poised between sleep and wake, huddled beneath my blankets in the knitted shawl I call my Widow's Wrap, the door to my bedroom opened. Ron walked it. Actually, he strode in. Not the Ron who 123 days ago fell asleep in his easy chair and woke up in Heaven. Not the Ron who suffered through 26 surgeries. But the Ron whose pictures sit on the shelf in the dining room, smiling at me as I wrote this blog. The well Ron, The whole Ron.

"Don't wake me up," I told him. "I don't need to get up until the alarm goes off."

He walked over to the bed and gently lowered himself to the mattress. "I didn't come to wake you up," he said. He laid down next to me and put his arms around me, warming me the way my Widow's Wrap had during the cold night. "I just came to tell you that I'm okay. I wanted you to know that."

I think he stayed for a while, until the alarm went off and I found my wrap pulled up around my shoulders.

Maybe I was dreaming. And maybe not. Perhaps it doesn't matter.

What matters is this: Ron, sick for so long, is now okay.

And I guess that means I can be okay, too.

THE MAGIC SWORD

“Never say goodbye because goodbye means going away and going away means forgetting.”― J.M. Barrie, Peter Pan

Allen lays three of his swords on the rug in front of me. Like others who function on the autism spectrum, he has many collections of many things, but swords are his favorite. One sword is heavy and broad, one is short with a curved blade, and one is thin but strong with a fancy handle. It is the last one that is the newest, purchased just hours ago at Booth Corner's Farmer's Market for Allen's birthday.

"I need to put my consciousness into one of these swords," he says. "Which one do you think will be best?'

A million questions circle through my head, but I look at each sword and ask the one I think matters the most. "All of your consciousness," I ask, "or just part of it?"

It is the right question. "Just the bad things," Allen says. He sighs. "I'm tired of feeling bad about Dad. I'm tired of trying to make him come back. I know..." he gulps "that he's gone. I did everything I could but--" he holds his hands out in front of him--"none of it worked."

I nod in sympathy. In the fifteen weeks since Ron passed away quite peacefully in his easy chair, Allen's magical thinking has kept alive the hope that his father will one day conquer death and return. Almost every Saturday has found us on another quest for clues. About three weeks ago, the journeys stopped as Allen processed the finality of his father's death and struggled with his loss.

Allen stands up and takes a deep breath. "I don't want to feel bad about it anymore. I don't want to remember the bad things. Like how sick Dad was. And how much pain he was in. It was really sad and I don't like thinking about it."

"Neither do I," I say and fight back tears. The nineteen years since the car accident injured Ron have been difficult, but the past two years were particularly grueling, not  only for Ron but for our family.

"So," Allen continues, "I'm going to take the bad thoughts and I'm going to transfer them to a sword. And then I will only have the good thoughts about Dad. The fun things. The happy things."

"I think, " I say, " that is an excellent idea." I get down on the floor to examine each of the swords carefully. I am not at all alarmed by my son's idea. As an adult with Asperger's Syndrome (HFA), Allen needs tangible items to help with intangible ideas. Many therapists posit writing down your worries on a piece of paper, folding the paper up, and letting the paper handle the worries (PsychCentral). 1 Peter 5:7 suggests that we, "Cast all your worries on Him, because He cares for you." Harvard Health concludes that many people with Asperger's suffer from anxiety but find it difficult to address. I've let Allen do what he needed to do to come to terms with the finality of his father's recent death.

And it seems we have arrived. I study each sword and comment on its good points. Then I touch the one in the middle, the one just recently purchased. A "Three Musketeer Sword" the seller called it because if its fancy red and gold grip. "This one," I say. "And I have two reasons."

"I agree that's a good choice," said Allen. "But why?"



So I tell him. "This sword was not here when Dad was here. So it has no...previous print from Dad. It has no...memories of him, you know?" Allen nods. "And it's long and strong and made of steel. It will hold even your unhappiest memories."

"Okay," says Allen and gathers up his swords. He takes a deep breath. "Good bye to the bad memories!" he says and carried the swords up to his room.

"Good-bye," I whisper and turn back to my knitting. Upstairs I hear the sounds of Allen's footsteps, his door opening, then silence. I do not know how long it will take to transfer all Allen's bad feelings about his dad.

But it does not take long at all. In a few minutes he is back. "I did it!" he says. "Now, I don't need to feel bad about Dad anymore. They're all there in the sword. I don't need to carry them."

"Great," I say.

"But," and he grins at me with the smile that has charmed since childhood, "I kept the good memories." He touches his chest." I kept them all right here."

I nod and look down at my knitting, letting my tears fall. "I kept my good ones, too," I say. 

FADING MAGIC

The magic thread of its huge haunting spell,
And that linked his life to magic kingdoms
And to lotus-land
--Tom Wolfe

He'd tried his best. For the last twelve weeks, he'd hung his father's shirts on the branches of a tree at Smedley Park, watched a horse race across the field at Linvilla, set his Dad's shoes out on the porch, waited for a train that never came, and watched a ship with a mysterious symbol on its hull float down the Delaware River. He'd kept hope alive in his heart, even as it grew fainter with each passing day, trying to read into the world around him clues about his father's return.

Despite it all, despite his fervent wish, despite the magical thinking that kept him from grieving too deeply, his dad hadn't come back. And now, as more and more pieces of his father were packed up and put away and the sounds of his father's voice became fainter in his memory, he began to think that maybe the magic wouldn't work. Maybe, wherever his father had gone, he just wasn't coming back.

"Why wouldn't Dad want to come back?" Allen asks me one evening.

Inwardly, I sigh. It has been a common theme of our conversation the last three months. Patiently, I give him the same answer I have been giving him all along.  "I'm sure he wants to come back," I say in a level tone. "But I don't think he can. It's like he's in another dimension in heaven. He just can't take a train or a boat to get back to us."

"Sounds stupid to me," says my son who lives on the upper edges of the autism spectrum and understands the world in the most concrete of terms. "If he wants to come back, he should be allowed to."

Ever since Ron passed away in his sleep, quietly slipping from us while my daughter and I were visiting my father, I have struggled to help Allen accept the finality of death. It is a concept illogical to most on the autism spectrum who find comfort in the ability to control the world around them, a world they often find too loud, too colorful, too busy. I have tried to make Allen's life predictable again with routines for the two of us: who cooks dinner, who cleans up, who does the laundry. Every Friday night is market night and take-out supper; every Monday night is pasta and a movie. The routines help Allen whose emotions have been scrambled by his deep loss (Indiana University, 2019). 



And I have accepted the pieces of magical thinking that has found us spending most Saturdays searching for clues to Ron's return, seeing each of Allen's ideas as a step he needed to take in order to mourn his dad. I have put no time table on it, resolving to participate in the magical journeys as long as Allen needed them.

But the magic appears to be fading. It has been two weeks since we have waited at a train station or checked the shirt Allen hung on a tree. 

"The thing that really bothers me," and Allen pounds his fist on the table to make his point, "is that the night Dad...left"--his voice catches on the word--"he didn't say good-bye. " His voice drops to a whisper. "I wish he'd said good-bye. Then I could have said good-bye to him."

"I know," I tell my son. "I wish that, too. But I don't think Dad knew he was leaving, that God was going to call him to Heaven. I don't think he had time to say good-bye."

"I was just upstairs," says Allen. "If he'd called me, I would have come downstairs."

"I know," I assure him. "And Dad knew you loved him."

Allen nods his head sadly and is silent for a few moments. I wait, giving him time to process. Then he heaves a huge sigh--full of loss and pain--and closes his eyes. From experience, I know that he is putting his words together carefully. "I guess," he says after a while, "the only thing left to do is to find a way to honor him."

My heart soars. This is a huge step towards acceptance. I nod my head.

"What would you suggest?" I ask.

He shrugs. "Well, maybe like once a month we could cook his favorite foods and play his favorite game," he says.

"That would be good."

"And at Christmas we could still hang his stocking."

"Definitely."

"And once in a while we can go outside at night and look at the stars. And think that Dad is looking at them, too."

I hold back my tears and nod. "Sounds good. And when Bonnie and Dennis are here on Sunday for your birthday, we're going to go put the flag from the VA on Dad's grave."

He is thoughtful. "My first birthday without Dad."

"I know. It's sad, but we'll all be together."

"Okay. Maybe we can sing the birthday song in the off-key crazy way Dad had."

"Of course," I say. "It's a family tradition."

Allen smiles at me and walks into the kitchen to get a snack. "I'm making you tea!" he says.

"Nice," I say. Magical thinking may not bring his father back, but it has been helping Allen cope with his loss and move into a world without his father at his own pace and in his own time. I hear him in the kitchen now, talking to himself as he fills the tea kettle, takes a mug from the cabinet, gathers up the creamer and the sugar. Step by step, he reminds himself what needs to be done. He gets to the other side of the task.

He, like his brother and sister, is getting to the other side, beginning to imagine life without Ron.

I look at the family picture on the shelf next to my desk, a photo taken years ago when the kids were small and Ron was well. On some plane, on some level, Ron still exists. Then I feel a tear escape from my eye. I, too, am learning to move into a life without my husband. 

I think I am going to miss the Saturday journeys. Even though I knew Allen's magical thinking would not bring Ron back, it was nice to keep the magic alive just a while longer. 

LISTENING FOR FATHER'S VOICE

10 The Lord came and stood there, calling as at the other times, “Samuel! Samuel!”

Then Samuel said, “Speak, for your servant is listening.”

I Samuel 3:10

"I don't think I can do this much longer," says Allen. He sits in a dining room chair, the image of discouragement; head down, elbows on knees, tall body leaning forward.

"Do what?" I ask. I am trying to remember if it is Chicago or Terbium that uses footnotes as I scan a new document. I turn in my own dining room chair to look at my son. My lack of energy to negotiate space in my office the past few weeks has moved my laptop and printer to a fold-out Ikea table in a corner of the room that was so recently Ron's. Allen now fights space aliens on the desktop HP upstairs.

 Maybe I'll take it back someday. Maybe I won't. Maybe I feel closer to my husband down here, where he spent his last nine months.

"You know," Allen shrugs. "Trying to get Dad back."

"Oh." I sigh. I remind myself many times a day that autism grief is not neuro-typical grief. In the last two months--almost three--Allen's magical thinking has kept the hope alive that his father will return from the dead. Even though he participated in the funeral and saw his father's body lowered into a grave, he continues to hold onto the possibility of a Bible type miracle.

"It's just not fair that I can't talk to him anymore," my son continues. "No matter WHAT"-- and he emphasizes the word by raising his hands up--"I could always talk to him." Tears form in the corners of his eyes.

He, like me, is remembering phone calls from hospital rooms when Ron would call to say "good-night," days he sat in his easy chair in the living room and called out a booming, "Hello!" to whoever entered the house. I hold back my own tears. I, too, miss my husband's voice.

My heart aches for my youngest child. Injured when Allen was young, Ron was never able to run and play with him the way he did with Bonnie and Dennis. The only father Allen has ever known has spent more time in hospital rooms than home.

But a Dad is still a Dad. 

"What do you think we should do?" I ask Allen, whose position on the upper end of the autism spectrum makes the finality of death a difficult concept to grasp. Almost every Saturday has found us engaged in another magical outing, gathering clues for his father's imminent return.

Allen sighs. "We'll try the train station one more time," he says without much hope. "Then maybe we can figure out a way to talk to him. Even if he can't come back, at least he'll be able to hear us."

"He hears us," I assure my son. "We can still talk to him.All the time. Anytime we want."

He nods. "I know. I do. But I would like to hear HIS voice." He pauses. "Do you have, like, an audio of Dad's voice anywhere?"

"Maybe," I say. Somewhere there are video tapes of family vacations. Do we still have a VCR? Does anyone? And there is a audio recording of our 25th anniversary service. Do I have a tape player?

Allen is now warming to a new project. "It would be so cool if we could just hear him! Just hear his voice sometimes. Then I would still feel like I had a Dad." A tear slides down his cheek. "I still need a Dad."

"We all do," I say. Then I recall a lesson at Wednesday Mission Possible, the story of young Samuel who heard the Lord calling. In 1 Samuel 3, the boy Samuel is serving at the Temple with the priest, Eli. When he hears a voice calling his name in the night, he assumes that it is Eli and runs to him. But Eli tells him it is God calling to him. Samuel learns to listen to the Lord.

Now, in this new season of my life, I, too, am waiting to hear from God. 

"You know," I say to Allen, "I'll bet that if you listen really closely, if you are really quiet, I'll bet you can hear Dad's voice."

My son is skeptical. "How would that work?"

I think quickly. "Well, let's remember what his voice was like."

"Loud!" says Allen. "But gentle, too. Like he was always happy to see us. Even when he was hurting."

"That's good," I say to Allen. "I remember the way he would hold up both his arms and say, "You're home!'"

"Yeah," says Allen. He smiles. "And then he'd say, 'There you are!' Like we'd been gone a really long time."

"Let's be really quiet for a moment," I tell him. "And we'll just listen for Dad's voice."

"Okay."

And for a few moments we sit in the dining room where Ron's hospital bed so recently stood, where a walker and a wheelchair were at the ready, where boxes of medical supplies usurped the room. And we listen. With all of the love we both still hold for Ron, with our memories of him close to the surface, we listen.

"I hear something," Allen whispers.

"So do I," I whisper back.

Allen smiles. "Maybe it's Dad," he says. "Or maybe it's God."

My heart swells. A Dad is still a Dad. 

 

VOICES FROM THE EDGE: Waiting for Dad

"As it was in the beginning, now and ever shall been
world without end. Do we get more comfort than that?"
                                          
                                          Joan Didion, The Year of Magical Thinking

Allen jumps out of the car, excitement in his step. "The train's coming!" he says. "It worked!" And for a slice of one instant I am nonplussed: it can't be real. My son runs along the sidewalk next to the train track, rushing towards the station where a gray-haired woman waits with a suitcase.

I lower the window on the passenger side of my Nissan, letting the early autumn breeze carry in the sounds and scents of the incoming train. The lady smiles at my son.

"Waiting for someone?" I hear her ask.

"My dad," Allen says. He bounces from one foot to another.

"You must be excited to see him," she says. "Has he been away long?"

But Allen is suddenly bereft of words to explain, so he merely nods. As the train brakes with a screech, he moves away.

I watch him from the driver's seat of my car. Despite Allen's dedication the last eight weeks to the art of magical thinking, I know his father will not be on the train. I take three deep breaths, a calming strategy I have used often. I can't let myself get upset now; Allen will need me.

The train comes to a halt and a conductor jumps down, taking the suitcase from the gray-haired lady and helping her up the metal steps. Allen stands to the side, watching closely.

No one gets off the train.

"Help you, sir?" asks the conductor.

"I thought my dad would be on this train," Allen says in a rush. "We did everything right, Mom and me. This was the train."

The conductor looks up and down the length of the train. "Maybe he took another train," he says.

"He was supposed to be on the 906," says my son.

"Ah, that's the problem," says the conductor. "This is the 730."

Allen, dejected, hangs his head and saunters slowly back to the car. I take another deep breath. We have been back to Smedly Park to check the shirt Allen left hanging on a branch; we have found the biggest tree at Rosetree; we've found the strongest horse at Linvilla. In the eight weeks since Ron died--passing away peacefully in his easy chair--my youngest son, who has high functioning autism (Asperger's Syndrome) has handled a variety of "scrambled emotions" (Indiana University, 2019). He's had trouble sleeping, is vigilant about locks and dead bolts, and insists on wearing the same shirt he wore the night his father died. Each of my three children--Dennis, Bonnie, Allen--has had to find their own ways to grieve the loss of their father, but the issue for Allen is compounded by his brain's atypical function, making the finality of death hard to accept.

According to Dr. Tony Attwood, a noted expert on Asperger's Syndrome, an increase in spectrum behaviors helps the neuro-atypical keep calm and block negative thoughts. Allen's belief that his father will come back if he follows a certain procedure of carefully designed steps is called "magical thinking," a psychological concept that protects the thinker from the unthinkable. Writing in The Seven Laws of

Magical Thinking (2012), author Matthew Hutson contends that such thoughts provide an evolutionary advantage, encouraging us to be more participatory in life if we have some control over the outcomes.

At its most simplistic, "magical thinking" is a form of bargaining such as Audry Huff displayed during the 2010 World Series when he wore the same red underwear for every game, convinced it helped the San Francisco Giants win. Writer Joan Didion (2005) used magical thinking to recover from the sudden death of her husband, John Dunne. It took Didion two years to realize that any amount of bargaining would not bring her husband back. Life continues it's cycle. She learned to find comfort in that. 

For Allen, it's only been two months. He slides back into the car. "Wrong train," he says and sighs. "I'm doing everything I can to bring him back. I don't know why it's not working.

I speak carefully, aware that while I grieve for the man Ron was before the car accident stole so much from him 19 years ago, Allen grieves for the only father he's ever known. "Maybe he's not ready to come back," I say. "Maybe he has somewhere else to be."

"Why wouldn't he want to come back to us?" my son asks.

I shake my  head. "I don't know, Allen. But I know he was tired of being sick."

Allen nods and I know he is fighting back tears. I reach across the car console and touch his shoulder, expecting him to flinch. He does not. Then he starts to laugh.

"It would be just like Dad," he says, "to get on the wrong train." He says it without judgment. "He always needed you to tell him what to do."

I smile, conceding his point. "So, what now? Do we wait for another train?"

"No. We need to check again next week."

"Okay," I say and put the car in gear. Each Saturday brings another magical outing. We pull out onto Rose Valley Road. I venture another thought. "Maybe he's not coming back."

Allen's shoulders sag as he considers the possibility. "Maybe," he whispers. 

There is silence in the car. I take a few more deep breaths, telling myself that in time Allen will accept his father's death.

"I just can't stop trying yet," says Allen. "Not yet. It's too soon." And it is too soon,

only eight weeks into the rest of our lives without Ron. 

"Okay," I say.

We drive down Rose Valley Road, past the college where Allen-despite having special needs--earned an associates degree in technology and Ron proudly clapped as his son received his degree.  I spy Hedgerow Theater where Ron and I saw "A Christmas Carol" and "Noises Off" and "Our Town." I make a right onto Brookhaven Road and we drive by the house where Ron grew up. We are all the way to Bridgewater when Allen speaks again.

"I just want him to know much much we miss him," he says with a sigh.

"He knows," I tell Allen. "I tell him every morning and every night."

"Me, too," whispers my son. And this time he is the one who reaches across the console and pats my shoulder. 

VOICES FROM THE EDGE: The Art of Magical Thinking

You will go out in joy
    and be led forth in peace;
the mountains and hills
    will burst into song before you,
and all the trees of the field
    will clap their hands.

Isaiah 55:12

I am at my desk, editing a dissertation for a client, when Allen slides a piece of white paper to me. Before I turn to my son, I put on my "I-believe-anything you say" face. "Hi," I say.

"This will be Dad's new body," he says and taps the paper.


"Oh." I study the sketch he has made. The facial features are blurred, but the outline has broad shoulders, muscular arms, a slim waist, long and rugged legs, slender feet. It is clearly human, but I know certain attributes have been influenced by the places we have visited in the past two weeks: the tallest tree at Rosetree Park, the strongest horse at Linvilla Orchards, the oldest bridge at Smedly, the fastest speed skater we could find on Wikipedia.

This is magical thinking at its best and most concrete, Allen's firm belief that if he can just concoct the right ingredients, his recently deceased father will come back again in a new body, one not broken by illness.

It began with the trees of the field.

Allen, who lives on the high functioning end of the autism spectrum and grapples with a world that is too loud, too bright, and too overwhelming, came in from the Plaza down the street one day last week and said to me, "The trees are whispering Dad's name."

"That's nice," I said. "God made the trees and Dad is now with God."

He gave me a curious look. "Not yet," he told me.

"But you know Dad died. You know he went to Heaven and God gave him a new body."

Allen nods. "I know. But I also know that Dad fooled death before. Maybe he can do it again. Remember?"

I remember. The night of the car accident, the surgeon who put the pieces of Ron back together again said to me, "Your husband is a strong man. Only a strong man could survive that." Time and time again in the last nineteen years, surgery after surgery, Ron defied the odds. Until on July 13th, he didn't.

I try to reason with Allen. "But you saw Dad at the funeral. You were there when we buried his body."

My son nods. "That was his OLD body. He didn't need it anymore. This," and he taps on the paper, "is his NEW body."


I get it, or at least I try to. Even before Joan Didion wrote her landmark book on grieving, A Year of Magical Thinking, the strategy Allen is using was a known anthropological concept. In short, it is the belief that a series of actions--performed carefully and in order--will result in a desired event. It is an illusion of control sorely needed by my son, to whom the forever loss of his father is just too much to accept.

And that's where magical thinking comes in. According to St. James, Handelman, and Taylor (2011), magical thinking provides a connection to what has been broken and helps the thinker cope with cultural expectations of control. During the days between Ron's death and his funeral, Allen needed to hold himself together, shaking hands and accepting hugs, saying "thank you" to those who expressed their condolences. 

All the kids miss their father keenly, but Dennis and Bonnie have their adult lives, their jobs, their partners. Dad was an everyday fixture to Allen, a large presence in his life. It's left a gaping hole. It's not the same with just the two of us, he complains. Hard to play Monopoly with only two people. I murmur in agreement.


"So, just how does all this work?" I asked Allen on Wednesday as we trudged through Smedly Park in the rain. I breathed a sigh of relief when I remembered where the old stone railroad trestle was. Allen needed something "old and stone that was from ancient times." It was ancient enough for him, part of my ancient childhood. 

Allen whirled and faced me quickly, tears in his eyes.  "You can't ask about it," he said. "You just have to let it happen. You just have to believe."

And I do. I believe that any amount of magical thinking will not bring back Allen's father, but I also believe that at this moment it helps Allen to feel safety in an unsafe world (Philosophy Talk, 2018). Every time he proposes a new expedition we need to take that is part of his carefully constructed script towards designing Ron's new body, I remind myself that autism grief is not neurotypical grief (Fisher, 2012.)

In a way, we're all guilty of a little magical thinking. Is his insistence that he hears his father's name in the leaves of the trees any different from Joan Didion's inability to part with a pair of her late husband's shoes because he would need them when he came back? Of if he thinks his father will have a new body with the strength of a horse far off from the lady at the bank who told me that each morning she wakes up and smells the breakfast her husband, gone 17 years, made every morning?

You just have to believe. I believe Ron is no longer in pain. I believe he is happy in Heaven. I believe I will see him again. 

And sometimes, I hear the trees whisper his name.