8/10/14
It took us 26 surgeries to realize
that, for Ron, more invasive procedures would not help the situation. In fact,
his abdominal muscles were so weakened by so many repeated surgeries and his
immune system so compromised by repeated infections, that he developed an enlarged
heart, suffered mini attacks, and eventually needed to have a pace-maker/
defibrillator installed. I wonder what parts from the Island the Professor
would have used for that?
One of the many roles of the Well
Spouse is to continue to be optimistic, even when it appears all hope is lost.
I was exhausted by surgery number 20, willing to throw in the towel and admit
defeat. The mountain of medical bills had grown proportionally with each
procedure. But Ron accused me, more than once, of “not wanting him to get well”
(yeah, because I liked all the burdens I was carrying so much), so we ploughed
ahead. After every surgeon we consulted—and the list was immensely long—vetoed
anymore surgery, we began to look for alternative means of relief.
Because there is no rescue for us.
We need to learn to rescue ourselves. We remake ourselves each and every day.
We find our own places of refuge—a few moments with a cup of tea on the back
porch, a fifteen minute trip to the bookstore, an evening out to dinner with a
friend. I made a very conscious decision at Year Two of this journey as the
Well Spouse: I could not let this control my life anymore than it had to. I
could not lose myself in what was only one aspect of me. I was sorry as could
be that the illnesses needed to control my husband, but I refused to let it
destroy me or my kids.
I’ve made good on my promise.
Despite the hospital trips and the medical bills and all the things I need to
do as the Well Spouse, I think of myself foremost as writer and teacher, not
care giver. I recognize that I have
gained much these last fourteen years. Even if Ron were to be cured tomorrow,
there would be no going back.
My life as a Well Spouse is not
easy; sometimes it is darn hard. But it is what I know. The roles I need to
fulfill, for Ron and for my students, are familiar to me. I no longer look for
rescue. I no longer need to be rescued.
I figured out how to rescue
myself.

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