Friday, July 24, 2020
Seashells and Shaving Cream
Wednesday, July 8, 2020
Heart Beat
The life you knew
In a thousand pieces on the floor
When this world drives you to your knees
You think you're never gonna get back
To the you that used to be
You don't live there anymore
Say goodbye to where you've been
And tell your heart to beat again.
Love's healing hands have pulled you through
So get back up, take step one
Leave the darkness, feel the sun
'Cause your story's far from over
And your journey's just begun
Step into the light of grace
And every scar
Be a picture that reminds you
Who has carried you this far
In this moment heaven's working
Everything for your good
And tell your heart to beat again
Friday, June 26, 2020
Voices from the Edge: Handle with Kid Gloves
It was the White Rabbit returning , splendidly dressed, with a pair of white kid gloves in one hand and a large fan in the other: he came trotting along in a great hurry, muttering to himself as he came, "Oh! the Duchess, the Duchess! Oh! won't she be savage if I've kept her waiting!"
—Lewis Carroll, Alice's Adventures in Wonderland, 1865
Allen has pulled a shopping cart from the corral and tied our market bags to it. He adjusts his face mask and prepares to push into the market. I stop him with a touch on his arm.
“Remember what I said about the gloves?” I nod to the heavy gloves he has been wearing for the last two days as we worked on the yard, clipping bushes and clearing up the debris from many winters of neglect.
He shakes off my hand impatiently. “What?”
I put on a smile. “I asked you not to wear those work gloves in the store because you’ve been using them in the yard. They are full of dirt. We don’t want to spread anything.”
His outburst is instantaneous. “Then I can’t go in!” he says loudly. A couple of people turn in our direction but after years of mothering this autistic adult, I know it best to just ignore them. “I need to protect my hands! The CDC says so because of the virus!”
I speak calmly, my mind exploring alternatives. “You could put plastic bags on your hands, the ones they have for the vegetables.”
But my son is adamant. “NO! I have to wear gloves! I have to!” I fear we are bordering on a meltdown, the last thing any mother wants in a public place. And at 6 foot 4 inches, Allen’s meltdowns can make others wary.
“Okay,” I say to him. “We’ll just go home and get a clean pair of gloves.” He is mollified for a moment but becomes agitated once back in the car.
“I just have other things to do!” He says. “I don’t need this!” He is taking short breaths, hyperventilating, and begins a series of grunts and groans, verbal stims.
“I know,” I say as I pull out of the parking lot. “It’ll just take a few minutes.” I keep my tone light. No pressure. All is well. The more I believe it, the more Allen will, too.
He is silent for a few minutes, slapping his hands against his thighs, but his breathing is becoming even. I can almost feel the fury leaving him as he sinks back against the seat.
We are two blocks from home when he speaks again, his voice quiet and regretful. “I hate when the beast in me comes out. I don’t like it at all. I don’t like to act that way.”
“I know,” I tell him. “None of us like to get mad.” As Allen has gotten older, he has gained more control of his meltdowns. They are now few and far between.
“I really try to have good intentions,” he tells me. “Like helping you shop and do the yard work. But then things go wrong. And I feel like a beast. And I just want to roar and I feel like I could just, like, eat the whole world.”
Lately, Allen has been able to verbalize his feelings more clearly and be open with them. I am proud of how hard he is working at it. “But you knew how to control it,” I tell him. “ You knew what the problem was and you told me.”
“And you solved it,” he said.
“No,” I tell him. “You solved it. You knew what you needed and asked for it.” I shrug. “I just happened to be smart enough to buy several pairs of gloves.”
We pull up to the house. I take a moment to admire the work we have been doing. The overgrown rose
bushes are now trimmed, the ground beneath them covered with mulch. The bushes on the hill are sprouting the little yellow flowers that were hidden under dead leaves. It has been a long, long time--years--since I have had time to give to a garden. I wonder briefly what Ron would think of the outside now. I go onto the porch to get a clean pair of work gloves, passing the little stone I have placed by the front steps. “ Goodbyes are not forever, goodbyes are not the end. They simply mean I’ll miss you, until we meet again. “ I return quickly to the car and hand the gloves to Allen. He puts them on and seems happy with them.“You can use these for market gloves,” I tell him. “We’ll wash them each time.” He nods and turns his hands
over, stretching his fingers. Sensory issues are a problem sometimes, but the gloves seem to be passing
the test.
Tuesday, June 23, 2020
After the End: Finding Rest
But after years of caring for a chronically ill husband, rest was not likely to happen.
The nobleman in John 4:46 would have known what I was talking about. While we are not told how long his son was ill, we can surmise it was not a sudden illness. Can you see him pacing the floor of his son's room, sitting by his bed and holding the hand of his child? Can you imagine him calling upon all manner of healers and doctors to try and bring relief to his boy? I can; for years, we left no stone unturned to try and find a cure for Ron. We traveled up and down the east coast, seeking answers to his chronic pain. I can empathize with this father, then, who likely had connections as a nobleman, perhaps was even in the employ of Herod.
Maybe he'd been give false hope. Maybe along the way a charlatan or two had promised a cure. In our nineteen year battle, we encountered more than a few of them as well.
Even as Ron suffered for so many years with so many maladies, I never stopped believing in God's ability to heal him. I did sometimes wonder why He did not. It was often hard to reconcile that to a Father I believed loved Ron.
To me, the most important part of the story of the nobleman is not the healing of his son; we have many examples of Jesus' ability to heal. What strikes me is this: This worried and heartsick father, probably weary from sleepless nights keeping vigil at his son's bed, did not immediately run home. No. He believed what Jesus said. He believed his son was healed. I can hear across the years the sigh of relief he breathed. I, who have experienced the exhaustion that comes with caregiving, can also feel the weight of his body sag as his shoulders round, his head bows, and now bereft of the adrenaline that kept him moving forward, can now rest. That night may have been the first good night's sleep he had in a long, long time.
I, too, take Jesus at His word. So many years of caring for an ill husband has left me depleted. During the years of caring for Ron, a restful night's sleep was only a dream. According to Crossroads Hospice, "caregivers must sacrifice a great deal from their personal and professional lives." I was among the 60% that still worked full-time (and often had two part time jobs as well). I can concur with the 55% of caregivers who say it is an overwhelming way to live. I need time to recover in body, mind, and soul.
God did not heal Ron. But God did take Ron home to heaven to live with Him. And it is now, as I approach the one year anniversary of his home going, that I am finding rest.
How can you take Jesus at His word? What promise can you claim today?
Sunday, May 10, 2020
That which is "yes"
i thank You God for most this amazingday:for the leaping greenly spirits of trees
and a blue true dream of sky;and for everything
which is natural which is infinite which is yes
and this is the sun's birthday;this is the birth
day of life and of love and wings:and of the gay
great happening illimitably earth)
breathing any—lifted from the no
of allnothing—human merely being
doubt unimaginable You?
now the eyes of my eyes are opened)
It is my first Mother's Day without Ron. I am missing the smell of burnt toast more than I could have imagined. I am trying to remember what he gave me last year. "Something one of the aids would have gotten," my daughter has reminded me. Ron was long past being able to leave the house by then. I think about sorting through my jewelry box; was it the turquoise earrings Veronica had ordered? Or the butterfly bracelet Phyllis got?Saturday, May 9, 2020
Calm and Quiet
I couldn't think. I couldn't pull myself up. I flailed my arms helplessly, certain that at the tender age of 9 I was drowning. Within seconds, though, the crest peaked and threw me onto the pebbled shore.
Suddenly, all was quiet. The water receded. I felt the warm sun on my face and shoulders. I felt the soft sand beneath my body. The shadow of my brother fell across me. "You alright, Linda?"
I nodded and he extended a hand to help me up. "Not yet," I said. "In a minute." The ocean, beloved haven of my childhood, was no longer something I understood.

I'll be frank, I do not understand any of what is happening in the world right now. I do not know how the corona virus, far across the ocean, mutated from an animal to a person. I do not know how it managed to cross continents and reach our shores. And I do not know how to stop it.
And before I can begin to wrap my mind around it, adjust to a new sort of normal and explain it all to my autistic son, I just need a minute.
Perhaps you've needed a minute these past weeks as news about the COVID 19 pandemic poured out of our television sets and our social media accounts. Perhaps you've needed to take a deep breath and slow your heart rate, stay for a moment on the soft sand of the beach, still and quiet while the shouting noises of the crowds echoed around you.
Just a minute, Lord. One more minute.
Like David, we need to calm our souls.
Psalm 131 illustrates how David, at a tumultuous time in his life, came to a place of quiet and peace. Scholars disagree on what might have been the circumstances he found himself in: was he running and hiding from Saul, or was he responding to his wife Michal who accused him of undignified behavior when he danced before God? Nonetheless, David needed to deny his own pride and display his willingness to simply serve God (Enduring Word). Verse 1 shows us David's humble attitude, his complete submission to Yahweh. As Jesus illustrated in Luke 14:8-11, David was willing to accept a lowly position.
In just eight weeks, the world we all knew has drastically changed. Eight more weeks may see another change. And you might be, like me, thinking that you should do something great and sacrificial at this time, some huge gesture that will benefit all mankind. You may think that the little you can offer--phoning a neighbor or taking food to an elderly parent or friend--is only a small drop of water. Take a minute, friend. Rest yourself in God.

Laying on the beach in Rehoboth, letting the warm sun wash over me, I spent moments resting. My brother stood patiently nearby, ready to assist me. And, eventually, I held out my hand to him and he pulled me up. I went back to the umbrella where my aunt waited with a towel to comfort me. It took me a few days before I was ready to tackle the ocean again, to see it as a friend not an enemy. No one rushed me. In the meantime, I played along the surf and built sandcastles with my cousins. One day, though, I was ready to return to the surf that I loved.









