Showing posts with label God. Show all posts
Showing posts with label God. Show all posts

Sunday, August 2, 2020

Voices from the Edge: God, Dad, and the Fortress of Solitude



“All of us need a private space. Autistic children need their secret places too in which they can hide and retreat to their own world. After all autism is a withinness disability and autistic children need the security of their own hideaways. I had mine, it was a place for me to think and recharge myself.” Temple Grandin


FedEx:Delivered 07/23 at 5:23 PM.

"Allen," I call into the dining room where Allen is playing a game on my computer. "I just got a text that your tent was delivered!"

"Really?" my son shouts back to me. "I thought it was going to be late!" I hear the chair scrape across the
floor and the sliding door Allen keeps shut to block out the game noises is opened. Excitedly, he rushes to the front door, eager to retrieve the package we ordered two weeks ago. I settle back into my rocking chair and pick up my knitting. A lot of preparation has gone into this event. We have put up a shed, sorted through Allen's collections of salvaged items stored for the last year under a tarp on the patio, and engaged in long conversations about the usefulness--or not--of certain things. The patio is now clear and ready for the tent--a pop-up gazebo--that will provide a space for Allen to work on his projects.

Like others who live on the autism spectrum, Allen needs his own personal space. It has not always been easy to attain in a small three-bedroom row house with siblings and a series of "lost boys" trooping in and out. A year ago, he claimed his now-married sister's abandoned room--once my office--as his project room, but I've lately been dropping hints about taking it back. Ordering the gazebo provided a space for Allen during the warmer months but also served as a prompt for him to clean off the patio. Win, win.

Or not. Allen comes in from the front yard, fists clenched together, struggling to control his breathing. "Let me see the text" he yells and grabs my phone. "Well, it says it was delivered but it was not! They are lying to me!"

I sense the beginning of a melt-down, something we struggle to avoid and have been managing well lately. I speak slowly and calmly; chances are, my son will follow my lead. "Hmmm," I say. I notice his breathing levels out. "Well, let's think about what we should do. Let's think about other things we've had delivered that didn't arrive."

Allen sits on the edge of the couch, my cell phone still in his hand. He stares at the text again. In a moment, he speaks. "We look in other places. Like neighbors' houses."

"Right!" I say, happy he is moving into problem solving. "So, let's go do that."

I abandon my knitting and my peaceful evening and we venture out into the summer night, heading in opposite directions as we check the porches and front stoops of neighbors. But, alas, the box is not to be found. I steel myself for what might happen.

But Allen remains calm. "There's that guy down the street with the dog," Allen says. "Sometimes we get packages for him and we have to drop them off. Maybe he got ours today."

"Good thought," I say so Allen grabs his car keys and takes a short drive to the mentioned house. I take the opportunity to call Fed Ex and reach a real live person, which is not an easy thing to do and may possibly cause me to have my own meltdown. I am told, politely, that the package was delivered but the driver will be contacted and someone will get back to me. I hang up knowing that no one will.

Allen returns and does a little bit of verbal stimming--grunts and groans--before he settles onto the couch again. "The thing is," he says, "I NEED the tent. It's, like, my space. My own personal space. I need it to work on my projects. I need it so you can have your office back." He eyes me. "You know, that, right?"

I assure him that I do know that and that I have called Fed -Ex. It is getting late now and there is not much more we can do tonight except wait, something Allen is not very good at.


He heaves a deep sigh. "There is one more thing we can do," he says. He gulps. "We can pray."

I am surprised to hear this as an option. It has been over a year, to my knowledge anyway, that Allen has prayed. I speak slowly, carefully. Allen is like a baby deer, sometimes, easily spooked. "Well," I say in my totally calm teacher voice, "that is a good idea. What made you think of such a good idea?"

He shrugs but I can tell he is pleased. "Well, Dad always liked my projects, right?" I nod. "But Dad is in Heaven with God now, right?" I nod again and try to keep tears from falling. "So I thought maybe Dad could talk to God about it, and let God know how much I NEED the tent. I think God will listen to Dad because, well, God's a dad, too."

I cannot argue with Allen's logic so together we bow our heads while Allen prays: "Dear God, if you have the time, could you go find my dad? He can tell you why I need the tent and how important it is to me. And if you talk to him, tell him Allen says 'hi'." My son finishes his prayer and looks up expectantly. "I'll check!" he says and goes to open the front door. "Nothing yet." He shuts the door again. "But there's a lot of people in Heaven. It might take God a while to find Dad."

I nod, not trusting my voice to speak.We watch an episode of Marvel: Agents of Shield. Allen prays again. And, after he has gone to bed, I add my own prayer. Fervently. On my knees.

The first thing Allen does the next morning is check for his package. It's also the second and the third thing he does. While he goes outside to move a few things into the shed, I make a phone call to the company that sold the tent. The woman I speak with, Jennifer, offers to send us a replacement or a refund. I tell her I will talk to Allen and let her know.


I am on my way outside, reluctant to damage Allen's fledgling faith, when I hear a thump at the front door. My heart pounding loudly, I go to the door and there, on the step, in all it's banged up and taped back together glory is a long heavy box. There is a picture of the gazebo tent on it.

"Thank you, God!" I shout as I rush through the kitchen and to the back door. "Allen!" I call across the yard. "It came! Your tent came!"

As excited as any small boy on Christmas morning, Allen rushes to the front and pulls the purloined package into the house, unpacking it and laying the pieces out carefully. "Wow," he says time and again. "Wow. God heard me. He must have talked to Dad!"

We haul the pieces to the patio and, with some effort and muscle, manage to get the gazebo upright and stable. Allen walks around happily hammering the tent stakes in place and asking which of the deck chairs he can use. Any of them, I tell him. I am probably as happy as he is that his place, his fortress of solitude, is now up and ready. But in a moment, I am even happier.

Allen, my tall son who has lived all of his life on the edge of the autism spectrum, who has struggled to adapt to a world he does not understand, who has in the last year come to a peaceful acceptance of his father's death, stands in the middle of the tent, his arms open to encompass his own territory. "Every time I am in my work space," he says, " I will remember that Dad still loves me." He lowers his voice. "And, I guess, God does, too."









Friday, July 24, 2020

Seashells and Shaving Cream

But Mary treasured all these things and pondered them in her heart. Luke 2:19



I  decide on coral and teal. If I cannot go to my happy place at the beach this year, I tell myself, I will bring the beach to me, beachy colors that will calm my soul every time I take a shower. Happily, I order a shower curtain and a window shade online. While I wait for the packages to arrive, I gather other items: new peach and white flowers for the washing pitcher that belonged to my grandmother, the little jar of seashells we bought in Bermuda, a pink candle I find in the downstairs cabinet. Amazon delivers on Thursday and on Friday, armed with cleaning supplies and a trash bag, I head up to the hall bathroom to refresh my soul with happy things.



I am delighted with the colors, glad that the light gray walls allow me to change the decor without major expense. I have even indulged in new curtain hooks in the shapes of seashells and starfish. I delve into the top drawer of the cabinet under the window. Time to clear out the clutter! I toss empty shampoo bottles, old toothbrushes, and a dried up jar of Vaseline with happy abandon. I reach into the very back of the cabinet and pull out a can.

And I stop and sink to the teal colored rug on the floor of the bathroom, holding a can of Barbisol shaving cream in my hand, and cry.



This was Ron's. The only kind he ever used, the kind that was put into his Christmas stocking by one of the kids every year and given on each Father's Day along with Old Spice aftershave. The can still emits the faint, clean scent of my late husband. Quickly, the memories come pouring into my mind: Ron on our honeymoon, carefully shaving while I watched, fascinated by the contours on my new husband's face. Ron on our trip to Jamaica, needing to buy a different brand of shaving cream at the gift shop--at an outrageous price--because he forgot to pack it. I probably said a few unkind words. Ron sitting in his wheelchair, no longer able to hold the razor, giving me instructions while I lathered his face and prayed I would not cut him. Ron in his hospital bed, the nursing aide using an electric razor to trim his bushy gray beard.

Memories, psychology tells us,  allow us to relive special moments in our lives, both good and bad (Psychology Today). And God designed memories so we could relive not only the grand moments of our lives, but the small and  intimate details that make up the years, the relationships. A marriage.

There on the bathroom rug, the shaving cream in my hand, I recall Luke 2:19, "But Mary treasured all these things and pondered them in her heart." I want to believe that these small moments--Jesus in his infancy and childhood, ordinary moments to anyone but a mother--are what gave her the courage she needed to bide him farewell.


It has been a year and a little since I bide Ron farewell. Not forever, but for now. I am learning to negotiate the path one step at a time, making a new life for myself and my autistic son, allowing myself to cry over a can of shaving cream and store up a few more treasures in my heart.

It was a long battle for us,  an uphill battle of many years and many illnesses. We learned in those years, Ron and I, to treasure the small moments of peace: a shared meal from a hospital tray, a day without surgery, a cup of tea after work drunk at his bedside. God was faithful on our upward climb. The road was often dark and treacherous, the path unknown.

The path led Ron to Heaven.



I walk alone now, on a new path of widowhood. I have not "moved on" from Ron, but I have "moved forward," twisting those many years of care taking--what was often back-breaking and soul-crushing--into my life. I hang coral colored curtains and seashell curtain rings. I cry over small things.

God is still faithful.

The tears are a healing balm. Soon I am able to get up from the rug in the middle of the bathroom floor and toss the empty can into the trash bag. I hang my new curtains, place my little memories around the room. I touch the seashell shaped curtain hooks one by one, each one a memory of a happy day. 

My husband is still here, in each action I take, each thought I think. Like the coral and the teal colors I have chosen, he calms my soul.





Monday, December 30, 2013

Carrying the Cross: Lessons I Learned

It was not something I was prepared for, but when the pastor called the afternoon of Christmas Eve and asked if I would be crucifer at the evening service, I said yes. Since joining the small Presbyterian church last April, I had seen the crucifer carrying the large golden cross and leading the procession each Sunday. The procession had not been part of my experience during my years attending a Baptist church, but having been raised as a Catholic, I found myself liking the rituals. So, knowing that I would be front and center for the very important Christmas Eve service, not only as crucifer but as a reader, I dressed carefully, even unearthing a pair of seldom worn high heels. Big mistake.

Memorial Presbyterian Church in Boothwyn is miniscule by any means. Our total congregation does not equal 50, yet Ron and I felt drawn to this church a year ago, when a friend invited us to the Christmas Eve service and I was hastily pulled up to the lectern to read a passage from the Old Testament. The minister was so grateful for my "super power" of reading and I realized how much I was needed here. It has been part of  my Sunday worship ever since. But carrying the cross? Well, we would see.


Pastor Kauffman's directions to me were skimpy. There had been, apparently, many last minute changes in the service and when I arrived at 7:15, no one seemed to really know what was going on except that we were not using what had already been printed in the bulletin. I'm a teacher and a mother, so I am used to chaos and change. No big deal. I was told I would be carrying the taller and heavier of the two ceremonial crosses and to "duck at the doorways." That was about it.

Okay, a little background here for those of you not familiar with the Anglican churches and the tradition of the crucifer. The word is made up of the Latin words "crux" meaning "cross" and "ferre" meaning "bear." So, literally, the crucifer is the cross-bearer. The crucifer plays an important role in guiding the worship of the congregation towards Christ and the cross, reminding them of His procession on Palm Sunday and His return to Heaven. No pressure, then.

After I had put on the black and white robes I've worn for the last year, I hefted the cross a few times. It was heavier and longer than I expected it to be. As the head of the procession, I would also have to open the door into the sanctuary while managing the cross, and carry it around the church during the candlelight ceremony. But the acolytes were already lining up behind me--ready to follow me whence I would lead--so there was no turning back. And as I carried the cross, reminiscent of Christ and His sacrifice for us, up and down the aisles of the small church and lifted it into its resting spot on the altar, I learned foru valuable lessons about being both a crucifer and a Christian.

1. KEEP YOUR BALANCE. Wearing high heels while carrying a large and heavy cross required a balancing act. The cross was top-heavy and would easily have toppled both me and it onto the floor. I needed to find the center of the weight, which was near the top of the cross, and focus my attention there. If I managed to keep the top perpendicular to the floor, the long staff would follow and cause me no problems.

Life, too, is a balancing act, often top-heavy with so many concerns and duties. Finding the center of the weights, prioritizing the importance of our many tasks, can keep us from becoming overly concerned about mundane details. Do the most important things and, like the staff, the rest will follow.

2. FIND YOUR OWN HOLD. A friend had told me to keep my hold on the staff low, around the region of my hips, but I found that I needed to shift my hands up just a bit in order to compensate for the weight of the top. Liturgically, it might not have been exactly correct, but it was what I needed to do to bear the weight. By the time I reached the turn up to the altar, I felt comfortable with my hold. This cross was not going anywhere without me!

I can apply this lesson to my own life and my own crosses as well. I may not always attack those things that need my attention in the way others think that I should. But that's okay. I have found my own hold on taking care of an ill husband, working two jobs, helping adult children, and trying to be a writer.

3. WALK SLOWLY. I tend to rush through things in an often vain attempt to save time, but there was no rushing the procession. The weight of the cross demanded that I slow my pace--particularly in high heels--and let the cross dictate the speed. At first, walking so slowly felt odd, but I realized that the symbolism of what I carried required dignity and reverence. Any task God entrusts to us should be handled in the same way. My long desire to make a living as a writer cannot be rushed, but must be slowly experienced. I am a better writer for the journey.


4. ALLOW JOY. For the first few moments of my time as crucifer, I felt overwhelmed, thinking of all the things that could go wrong, not the least of which was falling flat on my face. The fear kept me from enjoying the experience. Once I let go of my fear, though, I found myself marveling at the gift of Christ to me personally. I allowed the joy of my salvation to overtake my fears. I counted it a privilege to be the crucifer.

How often do I let fear interfere with my joy? How often am I afraid to embrace a new opportunity, or take a new step, because I fear failure? Allowing the joy to precede the fear can help me become a better servant for my God.

Each of us has been given crosses to carry. The one I carried Christmas Eve was designed to focus the worship onto Christ. It was important that I carried it with respect, reverence, and joy. And it is important that, in our daily lives, we carry our own crosses in such a way as to lead others to God.

Sunday, November 17, 2013

How Great is Our God!

Pastor gave me some words this morning and asked if I could arrange them into "something" for our hymn sing tonight. Here is what God gave to me:

HOW GREAT OUR GOD!

            The greatness of our God is seen
-in sky
-in sea
-in forest green

Living creatures, great and small
Reveal the God
Who made them all.

Unbelievable, inconceivable
Is the greatness of our God
He knows us
And enfolds us
-When times are cold
-When we get old.

Living creatures, great and small,
Reveal the God
Who made them all.

Our thoughts are known
To our mighty King
When we hurt
When we sing

He provides for our every need
Our every act
Our every deed

He will never leave us, nor forsake.
Our creator makes
No mistakes.

Living creatures, great and small,
Reveal the God
Who made them all.

Our Savior will return
And joy will fill our hearts
In the moment we will know
From God
We will never part.


Worthy, worthy, worthy
Is the God of our worship
He is worthy of our praise!
Magnify Him with Thanksgiving
Gladly our voices we raise!

Living creatures, great and small
Reveal the God
Who made them all.


Arranged by Linda Cobourn, from words provided by Robert Kauffman




This is the One

To my daughter and my almost son-in-law, who have found each other.



THIS IS THE ONE
This is the one who
                Will fold my daughter’s life into his own
                Will stand at the front of the church, waiting expectantly
                                As she appears in the doorway
                Will take her hand in his, sliding a circle of white-gold onto her finger
                                And making a promise he will never break
This is the one who
                Will find a house halfway between his and hers
                Will arm wrestle her bedroom furniture down our winding stairs
                                And into a borrowed pickup truck
                Will let her hang brightly colored curtains at all of the windows and
                                Tissue paper stained glass made by her pre-school class

This is the one. The one who
                Will show up for holiday dinners and family birthdays
                Will answer the phone when I call, holding it at arm’s length and shouting,
                                “It’s your mother!”
                Will accept that time with her does not belong to him alone.
He is the one who will
                Hold her hand as she labors in childbirth, buckle my grandchild into a car seat, and make sure to teach truth and light
This is the one who
                Will laugh when she laughs,
                Hold her when she cries, wiping each tear from her freckled face
                And tell her that of course she does not look fat in those jeans because she is perfect.
And he will mean it.
This is the one who will, in the inevitability of life’s harsh realities,
                                Stand beside her at a grave side
                                Pulling her to him as she says good-bye
                                Not caring that she stains the lapel of his good black suit—his only black suit—with     
                                                Her streaked eye shadow.
Because this is the one who
                Despite heart-breaks and broken dreams and lost chances and love left behind in a deep, long, valley of hurt,
                God has brought to her.
In the vastness of a universe often lacking in the essential ingredient of compassion, it is not really one person, one man, one woman
But God
                Who is
                The One.