Voices from the Edge: Handle with Kid Gloves

It was the White Rabbit returning , splendidly dressed, with a pair of white kid gloves in one hand and a large fan in the other: he came trotting along in a great hurry, muttering to himself as he came, "Oh! the Duchess, the Duchess! Oh! won't she be savage if I've kept her waiting!"

—Lewis Carroll, Alice's Adventures in Wonderland, 1865

Allen has pulled a shopping cart from the corral and tied our market bags to it. He adjusts his face mask and prepares to push into the market. I stop him with a touch on his arm.

“Remember what I said about the gloves?” I nod to the heavy gloves he has been wearing for the last two days as we worked on the yard, clipping bushes and clearing up the debris from many winters of neglect.  

He shakes off my hand impatiently.  “What?”

I put on a smile. “I asked you not to wear those work gloves in the store because you’ve been using them in the yard. They are full of dirt. We don’t want to spread anything.”

His outburst is instantaneous. “Then I can’t go in!” he says loudly. A couple of people turn in our direction but after years of mothering this autistic adult, I know it best to just ignore them. “I need to protect my hands! The CDC says so because of the virus!”

I speak calmly, my mind exploring alternatives. “You could put plastic bags on your hands, the ones they have for the vegetables.”

But my son is adamant. “NO! I have to wear gloves! I have to!” I fear we are bordering on a meltdown, the last thing any mother wants in a public place. And at 6 foot 4 inches, Allen’s meltdowns can make others wary. 

“Okay,” I say to him. “We’ll just go home and get a clean pair of gloves.” He is mollified for a moment but becomes agitated once back in the car.

“I just have other things to do!” He says. “I don’t need this!” He is taking short breaths, hyperventilating, and begins a series of grunts and groans, verbal stims.

“I know,” I say as I pull out of the parking lot. “It’ll just take a few minutes.” I keep my tone light. No pressure. All is well. The more I believe it, the more Allen will, too. 

He is silent for a few minutes, slapping his hands against his thighs, but his breathing is becoming even. I can almost feel the fury leaving him as he sinks back against the seat.

We are two blocks from home when he speaks again, his voice quiet and regretful.  “I hate when the beast in me comes out. I don’t like it at all. I don’t like to act that way.”

“I know,” I tell him. “None of us like to get mad.” As Allen has gotten older, he has gained more control of his meltdowns. They are now few and far between.

“I really try to have good intentions,” he tells me. “Like helping you shop and do the yard work. But then things go wrong. And I feel like a beast. And I just want to roar and I feel  like I could just, like, eat the whole world.”

Lately, Allen has been able to verbalize his feelings more clearly and be open with them. I am proud of how hard he is working at it.  “But you knew how to control it,” I tell him. “ You knew what the problem was and you told me.”

“And you solved it,” he said.

“No,” I tell him. “You solved it. You knew what you needed and asked for it.” I shrug. “I just happened to be smart enough to buy several pairs of gloves.”

We pull up to the house. I take a moment to admire the work we have been doing. The overgrown rose

bushes are now trimmed, the ground beneath them covered with mulch. The bushes on the hill are sprouting the little yellow flowers that were hidden under dead leaves. It has been a long, long time--years--since I have had time to give to a garden. I wonder briefly what Ron would think of the outside now.  I go onto the porch to get a clean pair of work gloves, passing the little stone I have placed by the front steps. “ Goodbyes are not forever, goodbyes are not the end. They simply mean I’ll miss you, until we meet again. “ I return quickly  to the car and hand the gloves to Allen. He puts them on and seems happy with them. 

“You can use these for market gloves,” I tell him. “We’ll wash them each time.” He nods and turns his hands

over, stretching his fingers. Sensory issues are a problem sometimes, but the gloves seem to be passing

the test. 

After the End: Finding Rest

"And there was a certain royal official whose son lay sick at Capernaum. When this man heard that Jesus had arrived in Galilee from Judea, he went to him and begged him to come and heal his son, who was close to death." ( John 4:46)

I leaned my head against the wall for a moment, pausing to try and infuse some strength into my weary body. The walk from the parking lot, through the medical pavilions, and down the long hallway to the main hospital seemed to get longer every day. There were times when I ran down the hallway at top speed, anxious to get to the trauma ward or the surgical unit, afraid it would be my last chance to see my husband. There were other days, like today, when I could barely put one foot in front of the other. I felt exhausted, convinced I could easily melt into a puddle of tiredness onto the beige rug of the hallway. Desperately, I needed rest.

But after years of caring for a chronically ill husband, rest was not likely to happen.

The nobleman in John 4:46 would have known what I was talking about. While we are not told how long his son was ill, we can surmise it was not a sudden illness. Can you see him pacing the floor of his son's room, sitting by his bed and holding the hand of his child? Can you imagine him calling upon all manner of healers and doctors to try and bring relief to his boy? I can; for years, we left no stone unturned to try and find a cure for Ron. We traveled up and down the east coast, seeking answers to his chronic pain. I can empathize with this father, then, who likely had connections as a nobleman, perhaps was even in the employ of Herod.

Maybe he'd been give false hope. Maybe along the way a charlatan or two had promised a cure. In our nineteen year battle, we encountered more than a few of them as well.

But then the nobleman, this worried father, heard that Jesus was nearby, just 20 miles away in Cana. Had he heard of the first miracle Jesus had done at the wedding, turning water into wine? It is clear he knew something of Jesus; he addresses him as "sir", which in the Greek is kyrie, meaning "lord." It seems from what is told in the book of John that he had traveled alone; his servants later met him on the road. What is also clear is that he had faith that Jesus could heal his son. When Jesus said, "Go thy way, thy son liveth," (John 4: 50) he did not question it. He knew it to be true.

Even as Ron suffered for so many years with so many maladies, I never stopped believing in God's ability to heal him. I did sometimes wonder why He did not. It was often hard to reconcile that to a Father I believed loved Ron.

To me, the most important part of the story of the nobleman is not the healing of his son; we have many examples of Jesus' ability to heal. What strikes me is this: This worried and heartsick father, probably weary from sleepless nights keeping vigil at his son's bed, did not immediately run home. No. He believed what Jesus said. He believed his son was healed. I can hear across the years the sigh of relief he breathed. I, who have experienced the exhaustion that comes with caregiving, can also feel the weight of his body sag as his shoulders round, his head bows, and now bereft of the adrenaline that kept him moving forward, can now rest. That night may have been the first good night's sleep he had in a long, long time.

And it happened because he took Jesus at His word, never doubting his son was now well.

I, too, take Jesus at His word. So many years of caring for an ill husband has left me depleted. During the years of caring for Ron, a restful night's sleep was only a dream. According to Crossroads Hospice, "caregivers must sacrifice a great deal from their personal and professional lives." I was among the 60% that still worked full-time (and often had two part time jobs as well). I can concur with the 55% of caregivers who say it is an overwhelming way to live. I need time to recover in body, mind, and soul.

God did not heal Ron. But God did take Ron home to heaven to live with Him. And it is now, as I approach the one year anniversary of his home going, that I am finding rest.

How can you take Jesus at His word? What promise can you claim today?